Tuesday, April 16, 2019

Journey of Hope

My Journey of Hope

I call my life a Journey of Hope because I'm still on the road, still raising my child with Autism and it is a Hopeful one because of my God. 
It is He who has sustained me, given me wisdom, and is healing my son day by day.
Since the day of diagnosis till now, it has been a roller coaster ride, with the occasional crash even but it still goes on.
For that, I'm thankful.

There is No cure for Autism  - the Dr. told me. But there are people who can help your son.
I was handed a list of names, addresses and phone numbers.
It was all a blur.  A fuzzy time of tears as I stumbled out of her Office after mumbling Thank you.
My son was oblivious - only interested in the table of Lego bricks at one corner.

My husband came, picked us up and I just remained silent till we got home.
It was only in our room that I told him what the Doctor had said.
But he can grow out of it right? Maybe we should get a second assessment. We had already had an assessment - done by a Psychologist who was helping our Church set up a Therapy Centre.

 
20/2/19
How I ended up with All day Breakfast

A , my ASD son has taken to insisting that I share my food with him. So here I am with
half a croissant, a fried egg, a slice of baguette and ham.

16/4/19

A, is on a 2 week holiday and is driving me nuts. I can only keep calm, pray and "review my situation" as Fagin once said in Oliver Twist. As I do so, I recall that I have let things slip. Having been lulled into a sense of complacency with his progress.
Right now, I need to draw boundaries, do social stories again  ( not so easy, now that he knows what I'm up to), and be more cunning in anticipating arguments.

How to behave in Church.
A new topic - I kind of assumed he knew how to, having gone to church all his life.
There are however some new challenges.
Now that he is trying to socialise - he doesn't know how to stop.